Story Idea-yeast,diet, vax, allergies

This person wants to share their ideas for the series. This item was emailed to this blog.--AR


Hello! Thanks for covering such an important topic. Here is what I think needs to come to the forefront. I'm the mom of two kids with ASD so I think I'm qualified to weigh in.

For one, wwww.tacanow.com and www.austim.com have some fabulous information about autism that is rarely talked about.

Other than that: 1) Yeast- Candida Albicans. This is a "theory" that in my opinion is right on that affects all of our ASD children. It causes problems such as sensory issues, weak immune systems, fatigue, irritability, speech delay, digestive issues, rashes, eczema, poor appetite, sleep disturbances, sound sensitivity and much more. It is worth looking into and very valid

2) Gluten Free Casein Free diet- supposedly controversial but plays into the yeast situation. Very effective when used long enough...i.e. most parents who claim that this doesn't work have only tried it for a month at most. It takes up to 9 months for the body to rid itself of gluten and casein remnants.

3) Vaccines- I know that this is also supposedly controversial but it is fact that not only is thimerosal used in vaccinces, but just as bad as that is the fact that formaldehyde, arsenic, aluminum bicarbonate (a neurotoxin), tin, and antifreeze are used at preservatives. Would you feed this stuff to your infant in his or her bottle? Research from the cdc.gov website the side effects of formaldehyde and the other ingredients including thimerosal. Isn't it quite interesting that acute mercury poisoning and autism share the same exact side effects? Then look at the others...do you think that brain damage and seizures is an acceptable side effect?

4) Allergies- vaccienes are also known to be the culprit of food allergies like wheat, milk, egg, gelatin and latex. This is because these ingredients are all present in vaccines and we introduce them to our infant children when they are less than 48 hours old to their very immature immune systems

5) Also talk about why it is that medical doctors seem to offer little or no support to those whose children have been diagnosed with autism. It's because they don't know much of anything about it to begin with . Most of a parents best education comes from other parents- not doctors.

I also wanted to point out: Isn't it interesting that parents are taught to look to our pediatricians/doctors for advice on autism from the moment they are diagnosed. The problem is that once a parent approaches the doctor, suddenly they know virtually nothing beyong "Hey, let's get your child onto a 2-6 months waiting list (if you're lucky) for speech therapy, Physical therapy and Occupational Therapy. Let's cross our fingers and hope for the best!" Although I agree that these therapies play a very important role in helping children with autism, I don't think it's enough.

Also, I am outraged that our insurance companies cover these "band-aid" treatments (as I have called them) but they do not bother to cover the core of the very effective treatments that parents are using to help their own children. I'm talking about proper supplements, vitamins, diets and anti yeast/fungal medications aka biomedical treatments. These are effective treatments....I am amazed at how few doctors actually recommend special diets for people with most any medical condition. I am also annoyed that insurance does not cover testing for vitamin deficiencies (another problem with our kids) and enzyme deficiencies. There should also be testing of our childrens blood work to determine how much of a problem yeast actually is for an individual child so that an appropriate treatment can be determined.Basically, I am upset because insurance companies and medical doctors are all so concerned about putting a "band-aid" over the effects that have already taken place but no one wants to get to the heart of the problem and look deeper inside of the child to fix what can be fixed. If we can do that, then it would be a lot easier for parents to deal with the rest of what is not able to be fixed and can rest easier knowing that they did everything they could do to help their child when all is said and done.

Want to know more? feel free to contact me! or view my story in a nutshell http://www.associatedcontent.com/article/412250/controversy_healing_autism.html

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Story Idea-Spectrum

This parent wants more coverage on awareness, diet, and echolilia. This item was emailed to this blog--AR

Something that should be covered, if it hasn't already, is to cover the ranges of children with Autism Spectrum Disorder. I mean by that is some of the kids behavioral issues when at home or outside. Not every child acts the same. Yes, they do share some issues; however, there are some children who acts out in different ways.

To show the public that not every autism child acts like this or that. And when a child is having a meltdown, study what other people see or think. So that the public can understand what a parent is going through during that time. So people can understand that we are not dealing with our child's emotions but everyone else's who is reacting to it in some way or form.

Also cover Echolilia in Autism children. I don't know if you ever heard of it but it effects at least 85% of children who have autism. And there are two different kinds of echolilia, you would be surprise how many parent's children have it and they don't know to much about it or have families like mine who does not understand what it is and why it is done. Some think that you can just make it stop but what they don't understand that children do it because they need to and if you try to stop it, they can pick up something else that can be even worse to replace what they are doing. And it is still echolilia in some form. Please cover that too, alot of parents on cafe moms (the newbe's) may not know to much about it.... I find it a good information for everyone.

thanks,
gina

I am sorry but I forgot to mention to add eatting issues. My son is 8 and does not eat stuff and he is growing but he is also losing weight to. Alot of families struggle with it so much and there are alot of people (like me) who can not afford to pay the experts to help me to get him to eat. There are parents who have no choice but to put their child on feeding tubes.

I feel that if we make the public know about that, maybe the state can start to look at helping families that are going through this with some kind of government help. I know I want my son to eat and gain weight but we are not so lucky to afford to pay or may not have the insurance coverage to get it done.

Also you should put out there how many families who have children who are disable, how hard it is for them to get coverage. Medical coverage is so hard to get now, but when your child is sick, they don't except these children who need it the most. I feel that if this is brought out, it would show the president how important the state should cover our children. Because if they don't then there will be so many children in the state that are not covered when they need it the most. I feel that the insurance companies should except these children because they need it so much and they know it too!!!! I hope you can take that and run with it too.

thank you,
gina

Story Idea-Gluten Free Casein Free Diet

This person wants to share their story of doing a diet. This item was emailed to this blog--AR

Here is my story .

My twins were diagnosed with Autism in October 2006. I started doing research on all things Autism and found the website autism.com <http://www.autism.com/>where it says that autism is treatable through the gluten free casein free diet.I did my own research with a PhD in
"Google" and began to search through my own cabinets and found that everything has gluten in it. I started the diet in December but found it difficult because of all the sweets at school during the holidays. That December, I used the 10 weeks of GFCF through the http://www.tacanow.com/ website, and started eliminating dairy.

The second week I did breakfast, the third week I did dinner, and the fourth snack. I started giving them leftovers for lunch. By the end of January we were fully gfcf. I kept a food diary and noticed they were hyper from other foods, apples, tomatoes and other vegetables. I found the Feingold diet and started taking away artificial colors and flavors and all the foods listed in
the Feingold plan. After being on Feingold stage 1, and GFCF for about a month, the teachers said they were noticing improvements. The kids were completely potty trained and seemed better. Still not being completely sure the diet was working, I gave them some sweet hearts from Valentines day and they had a complete meltdown. I knew I would be much stricter on
their foods from now on. That May, I started to reintroduce the fruits and vegetables from Feingold stage 2 and the temper tantrums came back, the messy underwear came back. Every three days after I'd reintroduced a new food they would melt down and mess their pants.

By August, after keeping a food diary for two months with these foods, Beginning kindergarten, I had a list of foods to stay away, and remarkably different children. Now, people look at them and doubt that they ever were autistic in the first place. My pediatrician who had seen
them when they were babies, said she didn't believe they were autistic until she saw the report from the other doctor.
I was told by the first doctor that they would need a lifetime of constant care and the only suggestion she gave me was respite care away from them now and then. She said they could never go in a regular classroom.
One of my sons is transitioning to a regular classroom. He used to be in physical therapy because he could barely write his name at the end of preschool and couldn't draw.Now, he has homework to write sentences, and he can write all his numbers and letters. He had summer school last summer, and his teacher said he can read like a third grader in
kindergarten. He is drawing pictures for fun.
He used to not be understood by anyone but me. He had speech therapy at home, and at school. Now, his speech is much clearer, and we can have complete conversations. I can't get him to stop talking now. He is understood by his classmates. The other kids call him by name, and he is
making friends. He still has speech therapy at school but not much more than other kids his age. The important thing is that he understands the conversation and can talk to other people without me. I went into a class once, and he raised his hand to answer a question. He now knows who hie should be listening to, and he's focusing on his teacher. He's even singing in Music Class!
He used to shake his head when he ran and would fall on his own feet. Now, he runs to school with his brother. He used to get occupational therapy, and because he had problems not knowing where to put his feet.
He used to hold his hands on his ears and scream, because large motor activity was much too hard. Now he is beginning to transition into a large PE class.
I know he wouldn't have made such remarkable progress in such a short time if I had not found the gluten free casein free diet and took away the additives and high phenolic foods from the Feingold diet, he would not have improved so dramatically.
My other son had a touch of OCD. If I didn't travel the exact route to get places, he would scream until I turned around. Now, he studies maps and searches for new ways to go. If all the clocks didn't have the exact same time, he would scream. When we cooked dinner, round pans had to go on round trivets. Rectangle pans were to be placed only on rectangle trivets. Now he doesn't care about any of that.
We tried to go bowling with him once, and he screamed until we would leave because it was too loud. Three months after the diet, we had a bowling party. He cheered everyone on, and had a blast.
He is in regular kindergarten, and except for some minor tweaks getting used to the routine on the first day, he has had green stamps for good behavior ever since. He is in a regular kindergarten and has his own friends. He has a helper, but seems to be just fine.

Please, do something on the affect on diet and it's relationship to behavior. This diet has changed my life. To see articles about diet
go to my website and blog
howtostartgfcf.com <http://www.howtostartgfcf.com/>
http://autismpreventiondiet.blogspot.com/