Sunday, October 28, 2007

Story Idea-Spectrum

This parent wants more coverage on awareness, diet, and echolilia. This item was emailed to this blog--AR

Something that should be covered, if it hasn't already, is to cover the ranges of children with Autism Spectrum Disorder. I mean by that is some of the kids behavioral issues when at home or outside. Not every child acts the same. Yes, they do share some issues; however, there are some children who acts out in different ways.

To show the public that not every autism child acts like this or that. And when a child is having a meltdown, study what other people see or think. So that the public can understand what a parent is going through during that time. So people can understand that we are not dealing with our child's emotions but everyone else's who is reacting to it in some way or form.

Also cover Echolilia in Autism children. I don't know if you ever heard of it but it effects at least 85% of children who have autism. And there are two different kinds of echolilia, you would be surprise how many parent's children have it and they don't know to much about it or have families like mine who does not understand what it is and why it is done. Some think that you can just make it stop but what they don't understand that children do it because they need to and if you try to stop it, they can pick up something else that can be even worse to replace what they are doing. And it is still echolilia in some form. Please cover that too, alot of parents on cafe moms (the newbe's) may not know to much about it.... I find it a good information for everyone.


I am sorry but I forgot to mention to add eatting issues. My son is 8 and does not eat stuff and he is growing but he is also losing weight to. Alot of families struggle with it so much and there are alot of people (like me) who can not afford to pay the experts to help me to get him to eat. There are parents who have no choice but to put their child on feeding tubes.

I feel that if we make the public know about that, maybe the state can start to look at helping families that are going through this with some kind of government help. I know I want my son to eat and gain weight but we are not so lucky to afford to pay or may not have the insurance coverage to get it done.

Also you should put out there how many families who have children who are disable, how hard it is for them to get coverage. Medical coverage is so hard to get now, but when your child is sick, they don't except these children who need it the most. I feel that if this is brought out, it would show the president how important the state should cover our children. Because if they don't then there will be so many children in the state that are not covered when they need it the most. I feel that the insurance companies should except these children because they need it so much and they know it too!!!! I hope you can take that and run with it too.

thank you,


Anonymous said...

ech·o·la·li·a (ĕk'ō-lā'lē-ə) pronunciation

1. Psychiatry. The immediate and involuntary repetition of words or phrases just spoken by others, often a symptom of autism or some types of schizophrenia.
2. An infant's repetition of the sounds made by others, a normal occurrence in childhood development.

[ECHO + Greek laliā, talk (from lalos, talkative).]

Julishere said...

That is a great thing to bring up.Trick or treat leaves me feeling depressed.My son is so beautiful you wouldnt think he had a diability.Its hard to take a 5 year old trick or treating when they cant say it.To have to explain to everyone is overwhelming.People were treating him like he was rude for not asking.Other peoples emotions is definitely hard to deal with.I hate when people say "oh, theres so much they can do for autism".Its obvious if your rich and famous your chances of overecoming autism triples.It makes it tough.Very good ideas!