Tuesday, October 23, 2007

Ian's story

This parent wants to share their story. This item was emailed to this blog--AR

My son Ian is alot like the others posted. I had a great pregnancy great delivery and great baby. He said many words up until 18 months when it all stopped. Everyone said its fine Dr's said not to worry all kids develop differently and since he drew alot maybe that's what the problem was.

We called up ECFE and asked their opinion and they sent us to a neurologist. At age 2 Ian could recite his alphabet a-z and z-a and count to 30 he was DX with PDD-NOS. At age 3 he started to read and write. At age 4 he was DX as High functioning Autism the Dr says he is at a genius level but his social skills are not there he doesn't understand he cant play rough with his sisters and that sometimes strangers are bad. He isn't afraid to go up and hug someone he doesn't know and regularly tries to go into someone else's car with them. We have a PCA work with him 5 days a week which helps out alot since he has 2 younger sisters. We recently had to place him on behavioral meds because while not on purpose he would hurt himself. Although it is a hard thing to deal with sometimes I thank god for him everyday. I learned how much patience I have and believe god gave him to me so he wouldn't go to someone who wouldn't understand him. Its one of the hardest things Ive ever done to love him so much and feel helpless in how to help him.

1 comment:

Anonymous said...

If you love your son and accept him as much as you say you do, then you are already doing everything you can. You are a wonderful parent, and Ian is very fortunate to have you in his life.

Too many parents forget that autism is developmental delay, not developmental stasis. Ian will grow and learn and adapt, albeit in his own way. Don't be fooled into thinking that fad treatments will help because somebody somewhere tried something and his kid "got better" sometime later. Our kids "get better" anyway. Given the lack of control subjects, a liberal definition of "getting better", and enough time, even grapefruit juice will "cure" autism.